This blog was originally started as a carry-over from a Facebook Page that I write called Amazing Ollie. I started the page to keep our friends and family updated on Oliver's medical issues and progress. (There is so much back-story to Ollie that this would be a very long post if I were to really get into it- I think at some point in the near future I will give him his own tab under our header to explain everything... But briefly: Oliver has neurological condition called Hemimegalencephaly. In addition to epilepsy, this condition has also caused him to have several delays and challenges. And yet...he frequently exceeds our expectations and he really does amaze me every day)
Anyway, I decided to switch over to a blog format because with a Facebook page, I am quite limited as far as photos and linking, etc. And also, to be honest, I started to wonder if the page made it seemed like his condition was the only thing I thought about (because it was the only thing I wrote about...). As you can probably tell from his beautiful smile, Ollie doesn't let too much get him down, even with all of his challenges. That said, I will continue to give updates on Ollie, but it's going to be nestled among all of the other stuff- the fun and silly and wonderful stuff- that happens over here in Frucceville.
And now that that's all out of the way...
Yesterday we had Oliver's PPT meeting, where we were updated on his progress given a little outlook as far as what Kindergarten (!) will look like next year. My favorite part was when the vice-principal said that Ollie is like "the Mayor" around school- everybody knows him :) His teachers also conducted several studies to gauge how well his speech is coming along and the results are that he can be understood by "strangers" (or in this case, teachers who don't know him as well) 82% of the time! I cannot believe that our little boy who we thought would be using sign language and a iPad speech augmentation program to communicate can now be understood nearly all of the time!
I was thinking about the day Ollie started at his school: he had just turned three. He had learned to walk 8 months before and the extent of his "talking" was about 6 or 7 letter sounds.
And now: Working on hopping on one foot and asking me to play "follow the weeder" (Oh, and in the car today, he tucked his bowl of crackers into his car seat and told me he was going to "save it for wayder" I could hardly stand the cuteness)
He has grown so much this year: physically (I can't wait to do his First/Last Day of School comparison picture!), academically, socially... you name it! Now too long ago, Ollie didn't want much to do with other kids. He either preferred adults or to play alone. Yesterday at the park, I watched him play with a group of boys- some of them were from his class- for almost an hour. He engaged with them and, more importantly, he kept up with them (when they climbed over the fence, he found his way around the long way and met back up with them). Such an incredible change!
Until then, he has a Summer School Program (4 days a week) in July and we are sure to do some traveling in August. He has already asked me if we can go to New York City (his favorite place in the world) so I'm sure we'll be doing that... And we have a surprise trip planned to North Conway to see Thomas the Tank Engine! Other than that, you can probably find Ollie draining our well with his most favorite pastime: spraying Zoe with the hose.
Here's to many incredible summer adventures... And to my seriously awesome kid!













































